enya's Blog

I had my yearly physical last month and told my primary that since being diagnosed last November with Ehlers-Danlos I haven't had any follow through on the recommendations that the genetic specialists had suggested.  After the diagnosis in November, I thought finally my "team" would help me.  I felt that I would finally be getting some direction in how to use my body mechanics properly and that I might be able to join a support group that would help me through the rough days.  My primary looked kind of stunned.  She told me that our clinic doesn't feel that people should need support groups because most of the "powers that be" think the doctors should be able to "cure" their patients.

I have to jump through hoops to get an appointment with a specialist and then wait six months for the appointment, by which time I'm trying to remember what was hurting at that time that I felt compelled to seek a specialist.  This is the U.S.A. for goodness sake.  What is up with that.

I recently requested my medical records and discovered several interesting errors.  One doctor noted that I was right handed in one paragraph and in the next stated I was left handed.  This is the first surgeon I saw for a torn rotator cuff.  Luckily I asked for a second opinion. Do I want this person operating on someone?  And we wonder why there are som many lawsuits?  or why medical insurance is so expensive.  I think the insurance companies and the attorneys are the only ones making any money.